“Beyond Bedside Manner” Talk For Symposium
Several weeks ago, I was contacted by the National Parkinson Foundation (NPF) and asked to speak at their “Caring for the Long-term Caregiver Symposium.” This all-day event was sponsored by the NPF,...
View ArticleRoll Models Mail Call: 05/04/2015
This is the first entry in my new series of posts, “Roll Models Mail Call.” These blog posts will be a little bit different from my typical articles, because the topics being discussed will be...
View ArticleOver The Bar
Whenever I deliver one of my Roll Models talks, afterwards I always try to stick around and make myself available to my audience, in case they have any comments to share or questions to ask me. While I...
View ArticleMetamorphosis
The last month was a very difficult and trying time for me. For starters, the weather wreaked havoc on my body for a few weeks. The temperature would bounce from a low of 40° F one night to a high of...
View ArticleSMA Conference 2015: Understanding
Over the weekend, I got to attend the annual Spinal Muscular Atrophy (SMA) Conference. This was my first time being able to go (because it was held at the Westin Hotel in Kansas City about 20 minutes...
View ArticleBe A Kid
The Fourth of July is a pretty big deal across the rural Midwest. While I know that places, like New York City, Boston, and Washington D.C., may put on some impressive shows and get all of the press,...
View ArticleA Recipe For Success: The Blissful Bite
As you have learned over the last year or so, I love to cook. Chances are, if I am home and am not working, I am either preparing food, reading a cookbook or food blog, or watching the “Food Network”...
View ArticleA Step Forward
Although it may not have made the primetime news hour or appeared on your Facebook feed, the disabled community celebrated a monumental moment last month. On July 16th, Nike released the first, major...
View ArticleEternal Youth
This Summer my grandfather celebrated his 90th birthday. Not only has he lived more than nine decades, something that we all hope we can do, but he has accomplished this feat in incredible fashion....
View ArticleSurprises
Having lived with a disease like spinal muscular atrophy (SMA) for almost 30 years, I have gotten pretty good at dealing with whatever crazy situations life can throw at me. I have had to figure out...
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